The principle of universal design as a tool for leaving no one behind

The principle of universal design as a tool for leaving no one behind

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Very much welcome, to this, side event, on, the principle, of universal. Design, as a tool. To ensure, that no one is left behind. In the work of this, development. Agenda. The 2030. Agenda, as we call it in sweden. I am marlene ekmanalden. I am the director, general, of the swedish. Agency, for participation. That is a governmental. Agency. Here in sweden, and. We are involved, in. Supporting. The, policy development, within the. Field, of disabil, national disability, policy. We are very happy, to be able to. To have this event today, and, talk of, the importers. Of, including. Disability. As a perspective, within the sdg. Work. And we are also very proud to have a number of. Very, experienced. And, interesting, speakers, with us. Uh, so. I hope, very much, this will be fruitful, for you all listening, and, um. And will be uh. Uh as a, source for inspiration, in your work. Uh. The format, as it seems, is a bit, cramped, and there is not so much time, to. To have a discussion, or questions, and also sometimes, this digital, format, can be. Uh a bit limiting, in in, having a very uh. Vital, discussion. So, if you have, issues, you would like to discuss, or ask. Or only comment, on. We are very free to do that within the chat function, in the question and answer faction here in zoom. And. We will. We will save everything. And if you would like. An individual, answer. To your own email address please, put also your email address together with your question, or remark. Uh, we will also try, to in the end of this. This seminar. Sum up. Uh some, some questions that has been raised, and uh, and uh, use, the final, uh final. Uh, item, to, to. Highlight, that. But, we are also very happy to, to comment, on things after, this seminar, if there is something you would like to, discuss, or ask. And we will also be able to, to, forward, your questions, to. The, participants. Of the seminar. There are. Uh. More than one. Billion, people. In the world that. That live, within disability. Of different kind. Most people live in developing, countries. And. Many people with disabilities. Are also among. The most. Economically. Struggling. Persons, in the world. If, the sdg. Agenda. Will come true, it is absolutely. Crucial, and. Necessary. That these people, are on board, in the work. And i would say that that is actually. Meeting, all the different goals, disability, is a cross-cutting. Issue that cannot be limited, to. To any specific. Specific, party's agenda, it's it's applicable, in into all the different goals.

And. And if this is not. Uh, respected. And if disability. Is not a perspective. That will uh, be influencing. The work of the different. Parts of the agenda. As from my point of view i think it will be very hard, to reach. The, the goal that. All the member countries of the u.n have. Decided, on. So. And, there are many, different, strategies. To do this and today, we will talk about. One specific. Strategy, and which is also a key. A key factor you can say to ensure. The rights of persons with disabilities, and that is. That is universal, design. And i will not, go more into that because we have, people with much more experience, and knowledge, that will do this later. But today. We will start, up with, uh. With, uh, a very uh experienced, speaker that have a very broad perspective. On disability, and has also. Been, a. Key person, in the rise, in the fight for rights of persons with disabilities. In different. Functions. During a long time. And. Miss, catalina, de vanders, is now acting as the special rapporteur. For, disability. To the convention, of the rights of persons with disabilities. You catalina, you were appointed, in december, 2014. And are just. Just about to finish your second term in this position. So i think you've gained a lot of experience, and i also think your. Your function and your position, has been a key factor, in actually, ensuring, that disability. Is. Part of the development, agenda. So. Please. Take the floor, and tell us a little about how you've been working and what you think about this issue, thank you. Thank you very much marlene, and, thank you to the swedish, agency, for participation. For inviting, me to participate. In this event it's very important, that we include. In the, high-level, discussions. Of this high-level, political, forum. The perspective. The needs and the rights of persons with disabilities. And, how we are moving forward, to. Make sure that, as you mentioned, uh, malin. That we are not leaving persons with disabilities. Behind. In my work as you said i have. A global, view, of, what is. Happening. With disabilities. When it comes to their enjoyment, of rights. All around the world. And. One of the things that we have to discuss, and i think that framing, is, around, the, use, of the principle, of universal, design. It's important, because, indeed. We need to start thinking about how to design, for everybody, and this is still one of the challenges. That we see around the world, we have a great, commitment. Of the international, community. Not only through the sdgs. But through the whole, human, rights, machinery. To include. To promote the inclusion, not only of persons with disabilities, but of all other groups that for some reason or another, have been marginalized. Or have been excluded. From the benefits, of the community. And, so we now have, all these. Structures. All these platforms. To fight, and to gain. Uh, our, recognition. Our rights our inclusion. But still we're struggling, in achieving, that precisely. Because our communities, are failing, to. Recognize. And understand, the needs of everybody. As part of the normal, planning. As part of the regular. Planning. We. Are still failing to understand, that humanity, is very diverse. And that that diversity. Should be the basis. Of the planning, the basis, of the policy development. And that responses. That are being created, should respond, to everybody, and not only to certain groups of people. We've, been, and this is particularly, the case of persons with disabilities. And communities. In which our needs. Are not necessarily. Considered, when planning, for designing, infrastructure. Designing. Buildings. Designing. Technology. Designing. Policy, responses, on participation.

For Instance. And so we need to change that and make sure that. Persons with disabilities. Will be. Included. As, any other beneficiary. Or any other member of the community. So that our needs are also, part of the, responses. In that way. Using, universal, design. It's a way that can take us further. In this fight for inclusion, because also and this is one of the wonderful, things that the disability, community, has been. Um. Putting an evidence, through our work. Whatever, works for persons with disabilities. Will also work for anyone, else right, what is good for us and what is good about universal, design, is that it works for everybody. And it makes the life, and the participation. Of everybody. Easier, older people, pregnant, women women. Children. Everybody, will benefit. From, a. Far more. Inclusive, uh. And, well-designed. Community, and again this is not only, uh, talking, about. The physical, infrastructure. But the, community, responses. Information, and communication. How do we make sure that everybody, really, it's informed, and participate. But in my work and i wanted to. Touch on that one of the main considerations. Is well we had the convention, on the rights of persons with disabilities, the convention, on the rights of persons with disabilities. Adopted, 12 years ago, brought. A lot of important, innovations. The community, the the global. The governments. Organizations. They were used to. Respond, or deal with persons with disabilities. In a way that was not, respectful. Of their rights. The convention, is bringing, a change in paradigm, as you know in the way in which responses. Need to be designed. To be in line with the rights of persons with disabilities, so it's not only that we're going to have responses, for persons with disabilities. Is that we're going to have responses. That are, respectful. Of our rights, and our, dignity. And this, is, important, because. The convention. Not only brings a lot of innovations, but has, informed. The development. Of, tools, like the sustainable, development, goals right, we cannot think about the sustainable, development goals being as inclusive, as they are. If we don't think about. The adoption, of the convention, and we got, all these references. Because of the adoption, of the convention. But. For the states. To be able to translate, we have to think that this is a relatively. Short period of time the adoption, of the convention, was 12 years ago the sdgs. Has been five years ago. So the states. What we see is that they need a lot of capacity. To understand, the new party. And to design. Policies. That are not only good for persons with disabilities. But also respectful. Of their rights. And i don't think that we can separate. Something that is good if it's not respectful. Of the rights. But. When, we start working, and in my work what i. Notice, is that. States, need this support, that we need to provide. More guidance. And this is what i've tried to do in my mandate, provide. Policy, advice. Recommendations. Explanations. On how to advance. In the different, areas, for instance. Participation. And consultation, with persons with disabilities, how do you really. Engage, in meaningful, consultation. And participation, with persons with disabilities, how do you engage in, policy, changes. And legislation. Changes, that are going to be meaningful, to the lives of persons with disabilities. And, in doing that i. Uh, find out, that one big. Partner. For the states. In this. Uh. Look for transformative. Change. Was the u.n system. That we needed to have a u.n system. Agencies. Funds that were more. Capable. To support. The states, to support the governments, in doing their job. And, and that the u.n, was not being held accountable. For what they were doing and this is an important, part i mean that the system was still not implementing, the convention, on the rights of persons with disabilities. Internally. Not, externally. So not. Hiring, more persons with disabilities, or becoming, more inclusive. And using, universal, design, internally.

For Their conferences. For their services, for their premises, for their communication. But also, when they engage, with the countries. How do they support, countries, that request. Advice. To really. Make, their efforts, in the implementation. Of the sdgs. Fully inclusive, of persons with disabilities. And because i noticed there was a gap. We worked together with the secretary, general. Uh in promoting, what is called the u.n disability, inclusion, strategy. And this is basically. A strategy, that has an accountability. Framework. So that. All the un, entities. Starting, last year. They have to, report. To the secretary, general. And then the secretary, general reports, to the member states, and saying well this is what we are doing, to implement, the convention, on the rights of persons with disabilities. And this is what we are doing, internally. So how are we making, our work. More inclusive. But this is also what we are making, to support, others. To make their work, more inclusive. So that the international, community, can increase their capacity. We need more leadership, we need states, but we also need. All the work of the u.n. That is being deployed, to implement, the sdds, to be inclusive, of persons with disabilities. And precisely, this strategy, is providing, the un system, with a framework. To move forward. And also to report back and say well we have. Not only. Said that we were going to do that. These, activities, but we are also looking. And measuring. Progress. And monitoring. Progress. And. Assessing. If the initiatives, that we have taken, are inclusive. And are really benefiting, persons with disabilities. So. We hope this is the first year that this. Yundis, reporting, is going to happen. We hope that, states are going to be looking very, closely. And, agencies. And nhris. And, dpos, are going to be looking very closely, to what this report, says. To what the un, is doing, to support the implementation, of the sdgs. And to make sure that we can promote, the use of universal, design, the use of the convention, on the rights of persons with disabilities. To push for responses. That will. Implement, the sdgs, in a way that is completely, in line, with the convention, on the rights of persons with disabilities. This is a very huge, exercise. That the, u.n family, is doing. I'm looking forward to see how this is going to happen. Uh we as i said that the report, is going to be presented, in the general assembly, so it's going to be the first year, but we have to be vigilant. Remain, vigilant, and and demand. The un system. Uh that they use all the international, resources. Public resources, that they receive. In a way, that is fully inclusive. Of the rights of persons, with disabilities. And with that i end and of course malina i remain, here, if there is any, clarification. Or questions that you might have i hope that i didn't take too long. I tried to limit myself to the time you provided, to me so thank you very much and again for the invitation.

Thank You so much catalina. Thank you for a very interesting presentation, and especially. For actually very clearly. Putting together, the the work of human rights and the sdg. Sdg, process, um the sdg process is very clearly. Based on on, human rights and i think you. Described, very, concretely, how it actually. Are. Are needing each other to to develop. As it should. Uh also thank you for. Describing, your. You work within the un system i think that kind of. Cross-cutting. Strategies. Is what we are looking for in most countries, and also in in regional, organizations. Like european, union and so on so, it's a really interesting. Uh. Interesting, strategies, has been developed, and it will be very interesting to follow that its. Results, and obviously. It can really function as a role model, also for the future so thank you so much. Um. The next speaker. We had invited, was, miss daniel abbas, she's. She is, a. Policy. Policy. Director, at desa. Which is uh the body of the un who is actually coordinating. Um. Part of the, the process, of the sdgs. Uh. Now unfortunately. There has been some kind. Of. Technical, problem and miss bus has not been, able to, to hook up with us here today. So. We have to. We have to do something else. And uh but, actually. What miss buzz was actually. Her her theme for speaking today was uh was another initiative, that you may say can complement, what is. Uh. Mr vanders just mentioned. Uh, as, as, mr vande mentioned, the, the. Secretary, general you and it has been very clear that disability, should should be a. A cross-cutting. And clear perspective, of the sdg, work. And has, as as you just heard, taking a number of initiatives, to ensure, this. And uh one initiative, that was taken and, that was he commissioned, the desert. As his policy, body within the u.n. To make, uh. What what is, going. Under the title flagship, report, and the idea was really to. Make an analysis. How well, disability. Was, included, within the work of the sdgs. And obviously, also the work within the national, processes, that are going on on around the world. And this report, was, presented. In. In. 2018. And. It very clearly, shows that, people. With disabilities. Are still very, much excluded, within the process. They are not clearly mentioned, and their different. Priorities, are not fully. Fully. On the agenda. And the linkage, also to the. To the convention. Could therefore, also be at least questioned. Um. There is also, a clear, which i think i talked on earlier that people with disabilities. Are still. Unproportionately. Big part of the poorest. Part of the population, of the world. Which means that. Parts of the sdg. All the sdg, goals are. Specifically. Also. Entitling, them. That are very urgently. In need of of including, a disability. To be. Be able to be reached. So. In the flagship, reports, they, a lot of data, and statistics. And other kind of, uh. Information, has been gathered, which, gives not a very uh. Not a very happy picture of the, situation, on disability. But still, uh. Very clearly points out that that this, this, item needs to be much more. Uh. Much better respected, and also raised within the sdg, process for the future, and i think we are going now into the second phase of the sdg, work. Which is also meant to be the very practical, one where, things should, really move. From word to action we usually, say in swedish. And this is a great opportunity. Actually is to also. To do something about the the perspective, of disability, and the rights of persons with disabilities, within the work. And, uh, this has to be. Be not only inwards, but also in concrete strategies, and as, miss devanders. Explained very clearly, that there are different strategies, needed and a key. A key role. Player in this is obviously people with disabilities, themselves, who are actually. The ones. Who has. The greatest knowledge and experience, of how their situation, is but also how things can be solved. And that is also a key theme of the convention. So uh this is uh really the the key uh. Findings, of the flagship, report, but also the. Uh. Also the opportunity, to use it as a stepping, stone as as the. Secretary, general has also mentioned. Uh the wishes, that all countries, reporting.

To The sdg, process, and to the high-level. Political meeting that's going on at the at this moment. Is that disability, should be a part of the reporting. And that is really crucial, to be able to. To follow the development, and to ensure that people, with disabilities, are on board. And, that can be done in many ways, statistics, data is an important, source but, obviously, there are also other ways to describe, development. And and we hope that maybe next flagship, report if there will be one will show that there has been a, great step forward. So uh this was, i, this is has to has to do, instead of miss bus that would obviously. Made. A a. More deep and. And. Good presentation. But i i tried to, to cover up, uh. A bit of what i think she would have talked about if she's been with us. Anyway. Um. Now, is, one of our. Uh. Another. Highlight, of, today, is that we have. Had a very, uh, knowledgeable. And very interesting. Person. She's director. On founder, of the inclusive, design, research, center, idrc. In, and inclusive, design, institute. And this. These uh institutions, are placed in canada. And uh. Miss, uh. Travians, has, especially. Looked out, that how design. And, uh. And, can be, used, as a tool. To actually ensure, inclusion. And human rights, i would say. And, uh. This is also. What. The theme of this whole seminar, is is about. So please, uh mr villanus. The floor is yours. Thank you and. I'm honored to be invited to this event, and, uh to hear. The, uh, convergence. Of, universal, design. The. Development, goals, and. Our, particular, version, of inclusive, of universal, design which we call inclusive, design. Which is, intended, to address, our digitally, transformed. World. So i've. Titled, my talk this disruptive. Opportunity. To pivot. To survive, and collectively. Thrive. And. Many people are not talking about opportunities. At the moment. We're, addressing. A pandemic, that has taken us by surprise. So, um. Why have i. Entitled. This, uh disruptive, opportunity. Well. One of the things that, um. One of my students, has been engaged, in. Is, etymology. Or, attempting, to find out. What is the origin. Of words and there were some, surprising. Revelations. Regarding. Where, some of the words that we are. Using, at the moment during this pandemic, have come from. Uh if you look at the term crisis. It actually means crossroads. Or a decisive. Point. Emergency. Is, actually comes, from. The terms, emergence. Or to emerge, arise. And bring to light. And catastrophe. Means, a sudden, overturning. And. If. You are, at. In a place. That, is currently, not, doing well. Then, this, also of course means an opportunity. What we see. Right now. Globally. Is that we have a dissolving. Of the status, quo, we. All, have. Experienced, some form, of leaving, normal, we're in suspension. There's a lack of predictability. And we're in a state of flux. Certainly here in canada, where i am and where my center is. We are still. Remaining, at home, and waiting to see. How we will, emerge, from. This, pandemic. And, what, emerges. When. There is this disruption. When the status, quo, is interrupted. Is, we start to reflect, upon, what really matters. What is really possible. What is required, of us. And, also, the value of life, and what makes life worth living. We have an opportunity. To pause, and to reflect, much more deeply. And. There is an overturning. Of, what, and who is valued. Of our conventions. And assumptions, and presumptions. And the things that we thought were impossible. That were too entrenched. To be able to. Change. So we're at this turning point a window of opportunity. Where there's a conflict, between, returning, to the status, quo you hear quite a few people saying, when will things get back to normal. When will we resume, our life as we knew it. And. We're at the cusp, of potentially. Doing something. That is profound, that will profoundly. Change, our society. We are pursuing. Change in ways that seemed impossible. I know that, many of us within the university. Were. Thinking, that working, from home was an impossible. Opportunity. That we couldn't. Actually. Connect, like this remotely. On a regular, basis. But this brings up the best and worst possibilities. There's this tension, right now between. An awareness, that we're all connected. And we hear quite a bit of discussion, about. We sink or swim together. That the health of the world. Is dependent, upon the health of all its members. And, there is an attempt, to consider. The consequences. Of the many decisions, that we've made very glibly, before. There, is this movement, that has been called love in action, that. Allows. Individuals. To consider. Um a much more altruistic. Way of living. But, at the other end. There is also, a counter movement. To. Pursue, self-interest. To see freedom. As no limit to that self-interest.

To Pick and choose values, facts and rules. And to grab power wherever, possible. And. In this. Turmoil. In this state of flux. There have been some wrong turns. And one of those wrong turns, has definitely, been in the area, of disability. We've seen, that, there have, decision, makers. Faced, with very very difficult. Decisions. Have decided. That there are sacrifices. That are worth making, in order, to survive. As a society. And, although, many of these. Decisions, did not need to be um enacted. Uh, just even the discussion. The, um, the, chance. That there would be such a wrong, term, at a time of crisis. Because this is not the first time of crisis, there will be, further, times of crisis. And is a an alarming. And. Misguided. Um turn of events. And, the, rationale. For thinking. That. We should, ration. The resources, that we have during time of crisis, such that, people with disabilities. Would not receive, their. The the necessary. Rations. Comes, from. Um a, misinterpretation. Of darwin. Called social darwinism. Which talks about the survival, of the fittest. And. Sees a world, where life is a winner takes all zero-sum, game. And this, is, a, misinterpretation. Of darwin. Because darwin, actually, saw. Diversification. As the fuel, of evolutionary. Advance. That, the. It allowed, for an expansion. Of evolutionary. Choices. And this was the key to survival, not survival, of the fittest. And if we. Actually, examine. Darwin. Um. We will see that it. And if we apply, it to our historic, advance. As a civilization. As the human race. We see that relaxed, selection. Offers greater genetic, choice and leads to human advances. In fact if, there had not been relaxed, selection, if we didn't support, the full diversity. Of humans. Then. We would not have developed, language. We advance, during collaboration. And across diversity. Predators. Are less adaptive. And so. During this time of crisis. And certainly, as we emerge, from this time of crisis. We need vulnerability. And fragility. Within, our society. To survive. And most importantly. We need a system, that cares for vulnerability. And fragility. This compels, us to create, a system, that will work for us when we are vulnerable. And one of the things that certainly, the world, has noted. Is that, we all are vulnerable. To some of the uncertain. And unpredictable. Things that will emerge. It that vulnerability. Isn't. Evenly, distributed. But. If we design, a system. That, is capable. Of supporting. The most vulnerable. Then this will help us to survive, the next storm. Perfect, monocultures. Won't survive. Social darwinism. Will leave us without, adaptive, choices. Or the safety nets that we need. To, thrive, as a society. And i want to put this from a data perspective. Because certainly, we've all been looking at data, i don't think there's anyone among us that hasn't been looking, at, those bar graphs.

Those. Bell charts. That show the exponential. Rise. Of. Povid19. In different countries, comparing, them between, countries. And even lately, with disaggregated. Data seeing. How, um. Disproportionately. It. Affects, the individuals. That are, already most vulnerable. But. We've been working, in the area of data, and specifically. Artificial. Intelligence. Data analytics. And how, it affects, individuals, with disabilities. And how the automated, decisions, that we make, affect, individuals, with disabilities. And, we've created, data sets, that collect. The various, needs, that, everyone, within, our population. Has. And if we plot these in a multivariate. Scatter plot, and, here, um, the reason for a multivariate. Scatter plot. Is that. It varies, from person to person and it's very different. But if we were to plot it in, a data chart that is called a multivariate, scatter plot, we would see a human starburst. Meaning, that it looks, like a bursting, star. Where. Approximately. 80 percent, of the needs. Occupy, the middle of the star. Taking up about 20 percent of the space, and distributed. Throughout, the rest of the star. Are the 20. Of the needs. And there is a jagged, edge. And this is the, pattern, that we see in many many normal distributions. That was. Seen by pareto, when he created his 80 20 rule, which said, pay attention, to those, 80 percent, of the. The, needs, within, the middle and, ignore. The outer edge. What you find, at that outer edge, is that, the dots, are, very far from each other meaning that they are very different from each other. And in the, center. The dots are very close together. Meaning that they are similar. And they are alike. And so, because of this pattern and because, of what pareto. Said. And what richard, koch, and other economists. Have, taken, from, pareto's. 80 20 rule, we find, that design. Of almost, anything, whether it's services. Environments. Policies. Products. Works. For individuals, that have needs within, that central. 20. Of the space, of the needs space, the 80 percent of the people, that, that, occupy. The 20. Of the needs space. As you move, from, that center, of the starburst. Design, is difficult, to use. And as you get to the that jagged, edge. Many people, or the individuals, that have needs within that jagged edge, can't use the design. And if you if, you look at data. So those predictions. Those, things that say the average, woman the average, man. The average, person. And make presumptions. And assumptions. And, guide our policy. And act as evidence. What you'll find is that those predictions, whether it's through data analytics, through statistical. Analysis. Or through artificial, intelligence. Automated, decisions. Is highly, accurate. For the the individuals, that occupy. The 20 percent, of the space in the middle those 80 percent of the people, that occupy, that, that domain. Is inaccurate. As you move away from that center. And is wrong. Is. Actually, the opposite. When you get out to that outer edge. So, what happens. Is that this pattern, permeates. Throughout. All of our systems, because we are currently, living in a very entangled. Complex, adaptation. And. The. It it determines. Who counts, and, who, is considered, in our decisions. If we look at. How, it contributes, to disparity. We see that i've already talked about how, the designs, that we have is are a misfit. For individuals, that occupy, that outer edge. But our products. Are also, affected. If we think about getting online, it can take up to ten times, as much money, to get online, if you require, an alternative, access, system. The availability. Reliability. Functionality. And cost. For the people that are in the middle. Gets better. That it is the opposite. If you are out at that outer edge, in terms of knowledge. Because, we depend, upon statistical. Averages. And the mean. And we attempt to create, statistical. Power. We have a lot of knowledge, about those individuals, in the middle. But we have a paucity. Of knowledge. Regarding, the individuals, out at the edge. Education. We attempt to create, a conformant, learner, we don't respect. And optimize. The diversity, or differentiation. Of our knowledge, sets. And so, our education, system, is also biased towards a middle. Similarly. We try to create, replaceable. Workers, and so. Our systems, of work the who we hire who we promote. How we pay people. Is biased, towards that middle. And, democracy. As we attempt to defend, it and as we reduce, it, to one person, one vote and majority, rules. Often. And, if we don't. Um, respect, the rights. That are laid out in, the human. U.n, human charter of rights. Then even our democracy. Is biased, towards, that middle. And so it has. Terrible repercussions. For anyone, that isn't within the middle. But it also. Has terrible repercussions. For our system, as a whole. And certainly this pandemic. The, um, sustainability. Issues, that we face, all of those sdgs. Show, just what the impact, of this is. On, our society, as a as a whole. Because, of the narrative, because we are biased towards, that middle, we have mass production.

We Have mass communication. We have mass marketing. We have a popularity. Push where the only value, that is expressed. In our networks, and in, our online, systems. Is pop, popularity. And so, our innovation. Is decreased. Because we have greater conformance, we have lock-in. Of certain conventions. We have reduced flexibility. Extensibility. Resilience. And responsiveness. And, one, of the things. That, is predictable. That, is. The greatest, probability. Is that at any time when you least expect, it. You will all, be in that outer edge, we will all require. The systems, that are designed, for that outer edge. And. One of the things that we have noted. Is that, in fact, innovation. And the ability, to detect. Weak signals, those stress testers, those. Canaries, in the coal mine whatever you call it, that allows, us to see what is, unpredictable. And what is, a, threat that is coming. Exists, out at that outer edge because those individuals. Are most vulnerable. To the. The, emerging. Threats. But. Those individuals. Because. They ha they have required, resourcefulness. Are also, the greatest, innovators. Most, of the things, that, have. Improved, our life. In our civilization. To date. Were, created. In order to meet the challenges, of individuals, out at that outer edge, and i would. Encourage, you to look at. Things like. Electronic. Curb cuts. And the curb cut effect. And if we go back to, darwin. Um, we need to ask who in fact is the fittest. It in fact is not the comfortable, or complacent. Individuals, within our society. It isn't those with wealth or power. They don't need resourcefulness. They have not needed to hone. The ability, to withstand. All of the, issues, that arise. It is those individuals. That occupy. That outer edge. And if we design. To encompass. The entire, range of our human starburst. Then we also have room for change and growth. When unexpected. Things come about. We, have the ability. To deal with them. And i know certainly, within, our center within our universities. Any of the things that we did. To address the needs of people with disabilities. Have. Been, advantageous. For everyone, within our community, at this time. But unfortunately. Even as we attempt to address. Social justice.

We Have ignored. The many individuals. Out there. And. We have used strategies. Which attempt, to group. And create. Other versions, of these starbursts. By creating. Bounded. Classifications. And comparing. Individuals. That belong, to. Well-defined. Groupings. With the. Performance. Of the system, for the. Middle. And so what happens, is that there are still individuals. That, fall through the cracks, or are stranded, at the edges. We need, to think of, different, ways. Of. Addressing, the needs, of the full spectrum. And. This leads us to. Rethinking. How we measure, how we determine. Whether we've been fair. Whether we have been unbiased. And, tracking, and monitoring. Our performance. In terms, of addressing, universal, design, or inclusive. Design. This requires, a recalibrating. About how we, measure decide, and judge. And this doesn't only apply, to, our monitoring. Of social justice. It also applies, to how we safeguard. Our system as a whole. In such a way that it can weather these coming storms. And there are many people have been attributed, this particular. Guideline. The true measure, of our any society, can be found and how it treats. Its most vulnerable, members whether it's, gandhi, or other. Individuals, that understand. Just how, a society. Can design. A system, that will survive, and thrive. One way to look at it from a scientific. Perspective. Is that currently, we are, navigating. In, through a complex, adaptive, system. And we can see it as. A complex, terrain. And unfortunately. Many people understand, that right now the the strategies. That we have. Only take us to the local optima. Because, we try to find a winning solution. Because we use. Majority. Measures, to determine, how well we're doing. Rather than considering. Individuals. That are at the periphery. We continuously. Refine. Our. Formula. And we find ourselves, stuck, on a local optima. It requires. A much, broader, understanding. Of. All of the diversity, and complexity. That is out there to reach the global, optima, that we need to. Actually thrive. And the, the only formula. That. We have arrived, at that complexity. Theory, theorists. Um. Individuals, that look at systems. Is that we need diversification. And difference. We need to include, diverse, perspectives, we need to listen to diverse, perspectives. And we need to empower, them, and we need to stop doing the same thing over and over again, and work. Together. When our processes, are guided by individuals, who have lived experience. Of struggle, and adversity, our systems, will function, in times of struggle, and adversity. And this is what we attempt to capture, in our three dimensions, of inclusive, design. Remembering, that we are all diverse, and what we need to do is we need to create, a system, integrated, system. That recognizes. That diversity, and can stretch, to the needs, of all of those individuals. And this means, that, not only do we make, our machinery. Smarter, our policies, smarter.

But We need to. Address. The way in which people understand. And value their own diversity. We need to the the second dimension. Of this is that we need to create an inclusive, process. Co-design. Nothing about us without, us. Continuously. Asking, who is missing. Not only inviting, people, to a decision-making. Table. That wasn't designed, with them or for them. But inviting, people to come to. Help us design, that decision-making. Table. Diverse, perspectives. Will give us, far greater prediction. Far greater creativity. And will help us to, detect. Those weak signals, that are going to change, our life. And then lastly. Recognizing. That we are intervening. In a complex, adaptive, system. We need to strive, for benefit, for all, and in fact. It is addressing, the needs. Right out at that. Edge, of the human starburst. That will benefit, all of us as has been shown. In, the many. What we call curb cut effects. And this will result, in more dynamic, resilience, for all of us. The types, of insights. In, our, various, areas, that we are dealing with. Can come from. The this alternative, way of looking, at it, whether it's, economics. And. Considering. Circular, economies. And full social, costing. Because. We will all, ultimately. Pay for. The, the. Type of social costing. That we have taken into account. In our competitive, economies. In education. Optimizing. The unique, human potential. Of each, of the members, within our society. Because we need more choices, we need that differentiation. And, as we automate. Many of the tasks that humans, currently, do. Um it will be the differentiation. Of human, skills. That are uniquely, human. That will be needed, within our economies. In terms of research, we need to learn as researchers. To address diversity, and complexity. And not reduce, it. So that we have statistical. Uh power. And so that we, isolate, the conditions, because. Certainly. The places, we apply, research. Do not, have isolated, conditions. In terms of planning, we need to plan, for the full, spectrum of needs right from the, beginning.

And In terms of governance, we need to think beyond. Majority, rules, and popularity. We. Within the inclusive design research, center use something called the virtuous, tornado. To design a system that continuously. Stretches, to the edge to grow. Organically. Through iterative. Cycles. The, systems. That will address. A fuller, range. Of individuals, who need our systems. And one of the, uh, frequent, objections. Is that what about cost, but what if we have found, is that if you plan. For that entire, spectrum, of needs. Then your, your plan will be far more resilient. If you plan only for the center. And determine. To leave. The edges, to later. What happens, is that your system becomes, very brittle. It. You need to patch on you need to. Continuously. Address, the, needs that you have missed. And it becomes. A system, that, has no longevity. And so it will cost much more. And, the other objection, frequently, is well wait a sec, if we attend, to those outer jagged edges, aren't we supporting, extremism. And, polarization. And the opposite, is actually, true when we make room for our differences, and variability. When we invite alternative, perspectives. We find a deeper, commonality. Exposure, to diversity, guards against, extremism. And comes, and crea, creates. A far greater equilibrium. So when we value the vulnerable, edge of our human scatter plot, it allows us to adapt to change and respond, to the unexpected. It allows us to detect, risks. It allows us to respond, to inevitable. Change, and transfer, of context. And certainly, our world, is in a moment, of flux, and change. It results, in greater dynamic, resilience, and longevity. It will reduce. The disparity. That, is threatening, our world at the moment, and affecting. All of those. Software, those, sustainable. Development, goals. And, it may hold the key to our survival. And thank you for giving me this opportunity. To discuss, this important, topic. And i would love to continue, the discussion, and the conversation. With, with all that are part of this. Webinar. And, um, i, look forward to answering your questions. Thank you so much. Miss, trivianas. This was uh, this was really a, thoughtful, presentation. I think. It's uh, i'll be thinking i don't even, want or will try to, to summarize. Uh i think it has to stand by. By itself, and there are so many different layers to think about but it's really giving a, a full picture, and, full understanding.

On On what, universal, design is really. Really about, in in basically, so. And uh yeah i i especially, would like to. To think about. The the issue of diversity, that we are as human, or diverse, there are communities. Out of us and you cannot say that. Someone, is in or someone else is out it's really a question of context, and and um. Situation, so i think if we remember that we will. Definitely. Um, also ensure, that. Uh people with disabilities, are included. Um. I think we will move on and. I think, it's it's not a long step but it's it's a different step, uh we are now. Meeting, mr. Anders, westyard. He's the ceo. Of uh independent living gothenburg, here in sweden. And i think under you has been involved in you have been involved in a very, very more much more um, maybe practical you say project. Uh, which is uh, which is focusing on universal, design in urban, planning, which is a great, big, issue, globally, and also here in sweden. And uh. I think this will be a way of. More, uh, in concrete, terms, talk a little about how can this be. Miss. Miss uh truvianos, have just explained how can it's been applied in more concrete, terms so please, welcome. Uh thank you uh first i'm. Really, grateful, being part of this event, um and as you said. This project. Uh. Focused. On urban planning and the name of the project, is. Unique, public. And. It's, it was. Presented. During, january, this year. Um. Our places. Belong. Belong to everyone, and and uh, but, the reality, is is completely, different. All people. Regardless. Function, should have access. To and, be able to use the public environment. On equal, terms. Um. And the project. Uh unique. Public, aims. To show how. Use. User, oriented, design. Process, can create. Better city. For. More people. Actually for for everyone. And i will just, summarize. A. Very short. Universal, design. Universal, design is a concept, that, carries great opportunities. For, innovation. Instead, of, adapting. And adding. In retrospective. Universal, design, creates the opportunity. To, work with. Multiple, perspectives. And needs, right from the start. Often we get, stuck, in, accessibility. And. Adaption. Which possibly, solves. Some of the problems. That. Original, design, has created. At the best. These solutions. Are, integrated. Into the existing. In a beautiful, and stylish, way. In the worst case. Uh the addition, becomes, both, both expensive. And, ugly. Unfortunately. However. However, in the project, we wanted to show that it can be done better. We design. And the universal, design, process, as a tool. The city's, public places, can be designed, with, more people in mind of course. We also designing, your universal, design, does not mean that places, become. Less aesthetically. Interesting. Um. On the contrary. The, the approach. Forces. An, innovative. Force. That often provides. More attractive, solutions. So i as i said before. I was a member. Of this, of this project. And it was actually for designers. And architects. That they were, selected, for this product. Uh none of them were experts. On accessibility. Accessibility. Or universal, design. However. Everyone had experiences. That were interesting, for the project. Many of them move into the boundary, between. Architecture. And design. For ind, individuals. Which i was one of them, with different disability. Of different, ages. And with different, interests. They were actually asked to participate. In the product. In a project. These individuals.

Have Been, referred. To as experts. As they are experts. On their, on their own. Everyday. Everyday, lives. And their own conditions. For, participating. In the public. Uh, the designers. And the experts. Actually worked, worked in teams. Two and two, together. They were. Together, they worked, based on problem. In the urban, space. That, experts. Testified. The solutions. Were intended. To be created. Creative, rather than limited. By consideration. Of materials. Economics. Feasibility. Or. Consequences. The sites. Selected, in in the project. Had a lot in common. On the one hand. They are squares, places, where much, uh take place, at the same time, where people meet. And where several, functions. Are merged. With each other. On the other hand, they are hubs, for public transportation. With both trams, cars traffic. And, bus lines. Um. Often the social, aspects, is forgotten. When you talk about. Universal, design, or accessibility. For example, staircases. Are mostly, used, uh. Stackers is mostly, about. Solving. Transport, from one. Level to another. Also, moving from a to b but there is a lot. A lot of things. Between, a and b. For example. Uh being. Being able to interact, with other people, and and being a part of the society. So it's not just about, moving, from from one spot to another spot. As i said but the city shall not only be function, but also place to stay. And one one one on the spot, uh, that, we were focusing, on is the, lion staircase, in gothenburg, and you will actually see. A picture. Of the staircase. Staircase. Um. That we actually. Came up with uh during, during the project. Uh, and. The staircase. Uh. As it is right now. Does not lead, anywhere. But uh, it's a central place, where people in gothenburg get together. The stairs, are used especially, in the summer. They are waterproof, stairs. And. Therefore they become a perfect place. To settle down. Together, to eat ice cream for example or drink coffee, whatever. Today the place is totally, inaccessible. For wheelchair, users. Both to get down. To the water, and to socialize. And you can see on the picture here. The picture. Depicts. The stair. In a much more, accessible. Way. You can actually reach the water and you can, socialize. Throughout the whole, whole staircase. And. Another. Such place where accessibility. And the social, aspect, is missed. Is the park, bench. Wheelchair users. Oftentimes. And. End up besides. And ever never in the middle of a group. Even though, i do not use the park, bench myself. Since, i'm a wheelchair user. I'm still drawn toward, towards, it while having a coffee break, for instance. The band, somehow, signals. The pause, area to drink coffee. Rather than stop in the middle, of the, square. To drink the coffee. And here we have another. Picture. Of. An accessible, bench, when you don't. Being forced, to sit on the side so you can actually. Be. Sitting, in the, middle, and being a part. Uh, of a social, situation. And, my question, is. I wonder. How will we react if the, park bench could be, only used for wheelchair. Users. And not by pedestrians. Like the benches, in fact are nowadays. But in reverse. And how could, a park bench. Be designed. With the principle, of universal, design. To be accessible, for all people all people, including, people, with, disabilities. And that that was actually a short. Summary, of them, of the project. And i'm actually, really glad uh. Being able to present this project. So thank you. Thank you so much andesh. I will also try to switch on my video doesn't work but, well. I don't know how to do it. Thank you so much i think this is an excellent, example. And i'm really glad that you here in sweden, have have had this project i think it can be. It was a road models for things that needs to be applied in in a, number of cities in our country. I. Personally, i get really happy when i travel. In my own country, or. Abroad, at, other circumstances. And. And, you meet this kind of environment, when you visit a city where you can. You, don't have to think about. Your, physical, or, maybe also. Psychologic. Uh, capacity. To actually use the, space of the. Of the city and, i'm also thinking out, at, as we all getting older. Uh that, life should be able to continue, when things are changing, uh. Like physical. Capacity, or other things and uh. And, thinking, of uh not thinking so short-minded.

And As as we heard in the earlier speech also, thinking early on, on some kind of. Uh, middle, middle. People. I think there's so, so easy ways to, um. To. To, actually. Um. Build away, uh this kind of exclusion, that so many people are experiencing. Young or old depending when things happen in their lives, which is not, uh, there's not necessary. And also in as you showed very clearly it's also. Uh opportunity, to actually create very beautiful. And and. And, mind-blowing. Areas, uh, new new kind of innova, innovative. Thinking. Also in the space of the city which is. Is also a really, good thing too. So thank you so much for sharing, your, your. Your, thing and. I think there are so many of these projects, and. And also. Initiatives, that's going on all over the world, to to actually. Broaden. Design, thinking, in creating, cities, that should be. Possible for everybody to use, and and live in and and enjoy. So. Thank you so much we have now, reached. The last part of our. Event, and uh. There has been. A number of questions. In the chat, on. If this, this seminar, is possible, to watch, online, later on afterwards, on the web, and it will be. We will, publish, it on on our website, but it is also, possible, if you are putting down your. Web address, oh sorry not web, uh your mail address in the chat we can also send you a file so you can watch it again if you have some technical, problem you would like to share it with someone else. So please put down your your, address, mail address in the, in the chat. We have also received. Uh. And the question, for um. For our early speaker. Miss yuta. And the question is like this, have you seen, a rapid inclusive. Inclusivity. In the design of digital platforms, yet through kovid. Or where have you seen, the biggest, change, during kovid. This is the question, would you like to, um, to answer it. Yeah sure i i would and and actually i i, i this is a lovely, learning moment, because we're all, restricted, to zoom. And someone, commented, that, the, uh.

The Lack of choice with respect, to how we are. Um. Configuring. The zoom system. Is. An illustration. Of designing to the edge, but. I i want to clarify, there. Um if this were inclusively, designed, what we would try to create, is a system. That allows. Us to, each. Have a, one-size-fits-one. Approach, to. How we. View the system how the information, is presented. And how we configure, this, um so that this is actually. Not an example, of designing. For the edge, the the. Inclusive, design, which we engage, in. Is about, digital systems, because they're, we have the possibility. To. Uh, unlike. A, a doorway. Where you have to. Predict. And you you don't know exactly, who all will. Come, to the doorway. You have to create. You have to. Predict, who will be there and what their needs will be, but when we have digital systems, such as zoom. If this were inclusively. Designed. Then you would all have choices, regarding, how you. Wanted to, enjoy, or experience. Uh the presentation. So zoom has a ways to go in terms of the agency, and self-determination. Of the diverse, participants. That are part of it. Um. The. Uh. In terms of the, question of what have been some of the changes. I, certainly within, and i can only speak. In, uh in terms of the changes, that we have seen. Um. In. Canada, here, and, in terms of policy. There has been. A. Reconsideration. Of. Um. Individuals. Who are, what we call the frontline, workers. And a focus, on. The the fact that there is over-representation. Of marginalized, community, in, in. Including. Um people with disabilities. Within, that. Um, and so. There's been an opportunity, to rethink, things like. Chronic care facilities. How do we care for. And. How what are the housing, options, for people as they age. And. And need to be in congregate, care we are, in the process, of rethinking. Um what should our communities, look like. The importance. Of. Um. Reducing, social, isolation. And loneliness. Maintaining. Uh, intergenerational. Uh contact.

So, Rethinking, our social systems, and the opportunities. That we give, for people as, they move through stages, of aging, because of course, age frequently, comes with disability. We are. In terms of. Systems, like zoom and especially, the online teaching, platforms. That we're dependent, upon. Those are also. Undergoing. Some rethinking. My my biggest, worry, right now, is that. This window of opportunity, to make more significant. And profound, change. Is going to close, without. Reaching. The many many issues, that are faced by people with disabilities. We have a great opportunity. Now that, we, have a greater understanding. Of what is actually possible, that those. Entrenched. And very very, um. Uh. Conventional. Systems, that we thought we couldn't, change. Are seen, as changeable. And so. The, i i think, it's a time, when we all need to push, as hard as we possibly, can. To. Get, the, the, issues, addressed. That are critical, to us and one of them is, how we measure how we value, how we. Design, policy, how we determine, what is evidence. Because right now, the, the, the systems that we use as evidence, the systems, that we. Use to. Create, priorities. Are biased, against. Small minorities, and outliers. Unfortunately. Even when we're, thinking about. Disability. Rights, and. Monitoring. Of disability. Rights, we tend to cluster, people into these bounded, groups leaving other people out, and so. I i think we need to. Rethink. Not just, how we design. Things. Environments. Architecture. But how we design. Our decision, processes. Our processes. For making. Judgments, regarding. How we are going to apportion. The resources, that we have. It needs to be a much more fundamental. Change. Thank you so much i think uh, this was really a good, ending, of, the. Discussion, today, i think we have only, tasted, on this issue, and. These, universal, design, obviously, have many, different. Routes to take and i think it really needs to. To be further discussed, and especially, further implemented.

In In. In different ways as you said it it doesn't always have to be a practical, solutions, but also. Um. How, we actually, uh are prioritizing. Or or actually as you said now demo in our democratic, processes. And, i hope that you who have been, listening, here today. Have, had, good. Inspiration, with you. I think, the sdg, goals and the processes. Among this, agenda. That is taking place all over the world are more important than ever in in the context, of what will happen after covid. And the, the extreme. The extreme consequences. That i think we will all see. Wherever we live in the world. Uh. And. I think uh i also hope that. This this has been a thought that can be. Something to to use, in individual, work in wherever you are active or and. I also hope that you will be. People, who are. Actually. Supporting. To ensure that that no one is left behind. Whether it's because of disability. Or other other, thing that is maybe, a bit. Uh. It's not considering, to be the majority. So thank you very much for joining today, everybody, who's listening, and it's a special thanks to all our participants. And speakers, it's been, an honor to have you here and we very much. Hope that we can. That we can listen to you again and thank you so much and we will as i said share, this um. This seminar, on on. Internet. And. Yes and please contact, us if you have any further questions so thank you so much. Everybody.

2020-08-08 05:01

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